Our Readers Tell Us!

"I just want to thank you for publishing the Digest. I especially enjoy the articles from people with Aspergers/Autism who are living with this disability, because it is so hard to understand my daughter's world sometimes. They also fill me with hope for my daughter's future and encourage me that the enormous challenges we struggle with daily are not in vain. Thank you!"
-
Lisa, Parent

"The Digest makes me feel like I am not the only one in the world who deals with the struggles of raising an AS child. The magazine is full of useful information and makes me feel a lot better to read it."
-Janet, Parent


If your child has recently been diagnosed, or you’re a professional working for the first time with children or adults on the autism spectrum, this can be an uncertain time, indeed. You will feel confused and doubt just about everything about yourself and your ability to survive, let alone thrive.

We’ve put together the following very basic information to ease your transition, introduce you to common terminology, and link you to other trusted sources of information. 

Be curious, be brave, believe in yourself and the child you love or with whom you work, and you’ll both be rewarded and enriched by the journey you are embarking upon.


Autism 101

Autism is a developmental disorder, typically diagnosed during the first three years of life. It is neurological in nature, affecting the brain in four major areas of functioning: behavior, language/communication, social skills, and sensory systems. The cause of autism remains a mystery. Current research suggests there may be different subsets of individuals on the spectrum, arising from genetics, environmental insults, or a combination of both.

Every person with autism is unique, with a different profile of strengths and challenges. No two individuals manifest the same characteristics in the same degree of severity. It is a “spectrum” disorder, and the various individual diagnoses are collectively referred to as autism spectrum disorders (ASD). Individuals on the spectrum range from those who are nonverbal with severe challenges that can include self-injurious behaviors and accompanying mental retardation, to individuals on the higher-functioning end of the spectrum (known as Asperger’s Syndrome) who are extremely intelligent, with good expressive verbal language, yet markedly impaired social skills and weak perspective-talking abilities.

The rate of autism is now 1 in every 100 births (Centers for Disease Control) and continues to escalate at alarming rates. Every 21 minutes a child is diagnosed on the spectrum. It is four times more common in boys than girls, and is consistently prevalent around the globe, and within different racial, social and ethnic communities. One in ever 58 boys will be diagnosed on the autism spectrum, and on a family level, 1 in every 68 families will be affected by autism.

Autism is a different way of thinking and learning. People with autism are people first; autism is only one part of who they are. ASD is no longer viewed as strictly a behavioral disorder, but one that affects the whole person on various fronts: biomedical, cognitive, social, and sensory. With individualized and appropriate intervention, children with ASD can become more functional and learn to adapt to the world around them.

Great strides are being made in our understanding of autism and Asperger’s and how best to help these individuals. Children are now being diagnosed as early as 12-15 months old, and many who receive intensive early intervention are able to enter elementary school in class with their typical peers, needing minor supports and services. However, no matter the age of diagnosis, children and adults with ASD are constant learners and significant improvements in their functioning can be made at any age with the appropriate types and intensity of services.

Early Warning Signs of Autism

The following list of symptoms represents the broad range of the disorder and is not meant to be a checklist to determine whether or not a child has ASD. Some children love hugs and are very affectionate; others are extremely touch sensitive to the point of it being painful. Some kids hit their developmental milestones, but they still seem to be “missing” something in the way they interact with others. Trust your gut instincts. If your child manifests several of these symptoms and your intuition suggests “something is just not right”, discuss your concerns with your pediatrician and ask for an evaluation. Get a second opinion if warranted. The earlier services are started with a child, the better is the opportunity for optimal positive learning and change to occur. Be proactive.

At 6 months
• Not making eye contact with parents during interaction.
• Not cooing or babbling.
• Not smiling when parents smile.
• Not participating in vocal turn-taking (baby makes a sound, adult makes a sound, and so forth).
• Not responding to peek-a-boo game.

At 12 months
• No attempts to speak.
• Not pointing, waving or grasping.
• No response when name is called.
• Indifferent to others.
• Repetitive body motions such as rocking or hand flapping.
• Fixation on a single object.
• Oversensitivity to textures, smells, sounds.
• Strong resistance to change in routine.
• Any loss of language.

At 24 months
• Does not initiate two-word phrases (that is, doesn't just echo words).
• Any loss of words or developmental skill.

Source for Early Warning Signs: Dr. Rebecca Landa, Center for Autism and Related Disorders at the Kennedy Krieger Institute, Baltimore.

Find the formal diagnostic criteria for autism, Asperger’s Syndrome and related disorders at the Centers for Disease Control website.



More Information Just a Click Away
Find a list of 167 Acronyms used in special education in our Article Library.

Many articles, filled with practical stategies, teaching tips, and inspiring words are available from past issues of the Autism Asperger's Digest in the Article Library.

Check out our Newsbites page for interesting bits of information about new products, services, and agencies within the autism community.

For more information on autism spectrum disorders, visit the Links page on our parent company website, Future Horizons. While you're there, browse through the world's largest collection of books, videos, and CDs on autism spectrum disorders.
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